Clik here to view.
The Power of Positive Thinking
At Eleanor’s last swallow study, two weeks ago, she aspirated both thin and thick liquids, which took her off of all oral feeds until the study could be repeated. That was, as they say, NOT GOOD....
View ArticleMystery boobs
Oh, pumping. You have such an amazing way of messing with my head. Why yes. I’m still exclusively pumping. It’s been over a month, and here I sit. Half an hour at a time, eight times a day (down from...
View ArticleClik here to view.
The Doldrums
I’ve been wanting to post an update, but there has been so little to say. “How’s Eleanor?” “Fine. The same. Great, actually. Except for that whole not-eating thing.” The last 10 days have been the...
View ArticleClik here to view.
History does, and does not, repeat itself
Eight weeks and two days. That was when I officially stopped trying to breastfeed my older kids. And that was when I stopped pumping for Ellie. I first seriously considered stopping about two weeks...
View ArticleThe Magical Mystery Patient
When people ask me what’s wrong with Eleanor, why she’s in the hospital, I stumble a little bit. I say “um” and “well” a lot, before finally coming up with “she doesn’t eat.” That is simultaneously...
View ArticleClik here to view.
Feeding minus hunger
One of the strangest part about having a kid who is fed exclusively by g-tube is how removed hunger is from the entire equation. I don’t time her feeds based on when she seems hungry, I do it by the...
View ArticleClik here to view.
Tubie life
I’ve been meaning to write a post about the day-to-day of life with a g-tube-fed baby/toddler, but find I’m at a loss for where to start. So, I’m coming to you! Please leave any questions you might...
View ArticleClik here to view.
Ain’t nothing but a g(tube) thing – your questions, part 1
OK, onto the next set of questions! I’ve tried to group them together thematically. I won’t get to all of them today, but it’s a start. [If you missed the post on the basics of our feeding setup, check...
View ArticleClik here to view.
Ain’t nothing but a g(tube) thing – your questions, part 2
I believe this covers most of the g-tube questions from you guys (minus a whole thing on feeding therapy, which I will get to), but please let me know if there’s any more questions! Go back if you need...
View ArticleClik here to view.
Let’s change everything
Hooray for progress. And yet, it makes everything more complicated. Ellie has made, by our standards, some really great progress in the last few months with our new feeding therapist. Back in August,...
View ArticleClik here to view.
Farewell Feeding Tube
Ellie had her g-tube removed last November. Crazy, right? For so long, feeding therapy was up and down and all over the place. I wondered if we’d ever make that breakthrough such that she would be...
View Article
